Empowering families through video education: Enhancing access to living-donor liver transplantation
Patil Kavarian1, Kathryn Czepiel1, Nancy Glidden 3, Lourdes Chua1, Brandon Bassett5, Annette Nasr2, Sarah Samreth5, Faith Borunda 5, Noelle Ebel1, Leina Alrabadi 1, Varvara Kirchner4, Amrita Narang1.
1Pediatric Gastroenterology, Hepatology, and Nutrition, Stanford University , Palo Alto, CA, United States; 2Nursing Research and Evidence-Based Practice, Stanford University , Palo Alto, CA, United States; 3Patient and Family Engaged Medical Education, Stanford University , Palo Alto, CA, United States; 4Abdominal Transplant, Stanford University , Palo Alto, CA, United States; 5Pediatric Transplant, Stanford University , Palo Alto, CA, United States
Introduction: In a national survey of parents conducted before and after their child’s liver transplant, only 38% accurately understood the outcome advantages of living-donor liver transplantation (LDLT), and “individuals with public insurance were less likely to feel well-informed about LDLT.” Outcomes research on living kidney and living liver donation emphasizes the importance of targeted educational materials to improve access.
Method: We developed a multi-disciplinary quality improvement team comprised of a living donor nurse coordinator, living donor advocate, hepatologists, transplant surgeon, improvement science expert, data analyst, and transplant center leadership to empower patients and families with information about living donation by developing culturally sensitive, health-literate educational videos. Learning topics include liver transplant and waitlist process, living donation versus deceased donation options, risks and benefits of living donation, and resources for living donors.
Results: We applied A3 methodology to develop a series of six animated educational videos available in English and Spanish over a 12-month period from January 2025 to January 2026. Our team collaborated on script development with input guided by partners in Patient and Family Engaged Medical Education, Health Literacy, Patient Advisory Council, and Family-Centered Care. Video development was integrated into monthly quality improvement meetings.
Conclusion: We believe targeted education about living donation – its risks, advantages, and social/financial impact – is critical to improving access. The video development process was a multi-layered and iterative process. Next steps include incorporating our videos into current workflow and assessing the impact of video viewing on patient and family knowledge around living donation.
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